リカ場 ~私の脳脊髄液減少症のリカバリー~

原因不明の症状に潜む脳脊髄液減少症の早期発見と回復、症状理解による患者に優しい社会の実現のために、私ができること

What is cerebrospinal fluid hypovolemia?

csf  japan  →   What is cerebrospinal fluid hypovolemia?
video description

I cannot write an English sentence.

But I want to tell a cerebrospinal fluid decrease symptom to a person suffering from unidentified symptoms of the world.

Therefore I make this sentence with an automatic interpreter.

I think that there is the funny sentence.

I’m sorry.

I write this in a short sentence.

So that you are easy to translate it.

I am a patient of the CSF hypovolemia of Japan.

Do you know the thing hiding behind in an unidentified symptom?

From here, I write my real thing that I experienced.

Possibly to you who suffer from an unidentified symptom it may be caused by a cerebrospinal fluid decrease symptom

A symptom to write is the symptom that I happened for a cerebrospinal fluid decrease symptom from now on

may be improved by treatment if your symptom is caused because a cerebrospinal fluid leaks.

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To you who suffer from an unidentified symptom.

Do you know the cerebrospinal fluid decrease symptom?

Have you undergone a detailed examination about a cerebrospinal fluid decrease symptom at a hospital?

When cerebrospinal fluid is leaking, do you know that various symptoms come out to your body and mental condition?

To doctors of the world

Most of doctors of your country may not know the cerebrospinal fluid decrease symptom.

In Japan, there is a doctor treating the patient of much.

Please know the cerebrospinal fluid decrease symptom.

please learn from Japan.

Please help the patient of your country.

When cerebrospinal fluid continues leaking, intense fatigue comes out.

In the case of me, intense fatigue continued during a long term.

I feel that I resemble chronic fatigue syndrome.

Symptom

the symptoms are various.

Most of symptoms have difficulty in expression.

The symptom changes by atmospheric pressure.

When I stand, symptom tends to become worse.

・Mal de debarquement syndrome (or Mal de débarquement syndrome )(MdDS)

(I think that MdDS is one symptom of cerebrospinal fluid hypovolemia.)

(MdDS)having got off an airplane (ship), I became very ill.

MdDS Symptoms are often increased with changes in barometric (weather) pressure.

cerebrospinal fluid hypovolemia Symptoms are often increased with changes in barometric (weather) pressure.

I think Mal de Debarquement syndrome is not rare.

It is not rare that cerebrospinal fluid leaks.

However, Japanese most doctors believed that it was rare.

It will be that the doctor of your country thinks that a cerebrospinal fluid leak is rare.

Doctors do not notice that a symptom of MdDs resembles csfh.

I was receiving treatment.

・ I stopped leak of the cerebrospinal fluid with my blood.

・I used the blood products several times.

・ I increased cerebrospinal fluid by artificial cerebrospinal fluid infusion measures temporarily and raised cerebrospinal fluid pressure from 8 to 30 temporarily.

There is no symptom such as the seasickness now.

★I think that MdDS is a sign due to the cerebrospinal fluid hypovolemia.

The reason got off an airplane and a ship in the past and my sign became severe.

The cerebrospinal fluid protects brain from an atmospheric pressure change and vibration from the outside.

My brain which cerebrospinal fluid decreased cannot protect brain from an outside change enough.

My sign worsened after a landing from a ship and an airplane more.

After having got off an airplane after having got off a ship, the sign continued.

In the case of me, I think that this is because cerebrospinal fluid decreased.

In the case of me, I discovered a cerebrospinal fluid leak by inspection called the RI.

I received plural treatment and recovered.

As for me, the sense that was in the rough sea faded away now.

(i am experienced in a symptom written here.

My cerebrospinal fluid leaked)

・Rocking (Like walking on a trampoline.)

・Swaying

・Ataxia

・Fatigue

・Difficulty concentrating

・Sensitivity to light

・dyspnea

・Headache

・Tinnitus

・Nausea

・sexual problems

・Confusion

・vision problems, blurry vision

・Memory loss

・Dizziness

・Double vision

・not sweating enough

・Nystagmus

・sensitive to a sound

・Obstacle of the sense of balance

・sensitive to light

・Intense tiredness

・Walk disorder

・Numbness of hands and feet

・The obstacle that is hard to write

・Sleep disorder

・Sudden daytime intense sleepiness

・A yawn does not stop.

・Defects of memory

・higher brain dysfunction

・Irritable

・Depression

・Drop of the cognitive function

・Depression

・Mood disorders

・Drop of the will

・Pain of the whole body

・Pain of limbs

・Pain of the internal organs

・Pain of the shoulder

・Chest pain

・Pain of the neck

・Sore throat

・Pain in the mouth

・Pain of the tooth that a cause is not found on a tooth

・Eyesight declines

・Pain of eyes

・Taste disorder

・Sense of smell disorder

・Idiopathic Orthostatic Hypotension and other Autonomic Failure Syndromes

・urinary problems, such as incontinence, and incomplete emptying of the bladder

Please Don’t miss it.

About the symptom, I wrote it in Japanese in detail here

This is a group of Japanese doctors.

★ What is cerebrospinal fluid hypovolemia?

知道脑脊髓液减少症吗?

脊髓液,有你的症状和关系

 

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自己紹介

lily

健康オタクの脳脊髄液減少症のサバイバーです。「原因不明」「異常なし」「精神的なもの」とされたり、何かすでに別の病名がついている人たちの中に、脳脊髄液減少症が隠れている可能性について、広く社会に伝えたいと思っています。

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